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Make a donation and help fund research for a cure. Get free wound care supplies through debra of america's wound care distribution program, providing support for those with epidermolysis bullosa (eb). Learn about epidermolysis bullosa (eb), a rare genetic disorder, its symptoms, treatments, and personal stories from the eb community at debra of america.

Debrah Ann Miceli, known as Madusa, attends the red carpet premiere

Get to know the dedicated team behind debra of america, working tirelessly to support individuals and families affected by epidermolysis bullosa (eb). Learn more about our work. For more information or if you have any questions, feel free to contact us at

Debra of america is part of debra international, a worldwide network of national groups working on behalf of all people living with epidermolysis bullosa (eb).

Learn about debra of america's team working to raise eb awareness, and provide eb support to patients and families affected by epidermolysis bullosa (eb). Explore our mentorship programs, eb nurse educator program, new family advocate program, debra care conference & additional support services. When there seems to be no way out, there's debra of america, a lifeline for thousands of families living with “the worst disease you’ve never heard of,” epidermolysis bullosa (eb). Founded in 1980, debra of america is dedicated to improving the quality of life of all people impacted by epidermolysis bullosa (eb) in the u.s

Debra Miceli poses on her truck Madusa during a media opportunity
Debrah Ann Miceli, known as Madusa, attends the red carpet premiere
Of Madusa Photos and Premium High Res Pictures - Getty Images